Avery's Bucket List is an imagined "bucket list" -- written by her dad as though Avery, who is expected to die by age 2, will make it past that age and experience life's milestones as a healthy girl.
Here is the part I like most from their interview with CNN
Here is the part I like most from their interview with CNN
"I try to not overload with too many facts about SMA," Mike Canahuati said. "I try to keep it as fun and lighthearted as possible within the realm that this is serious, trying to make people understand what is SMA and what my wife, my daughter and everyone who loves us is going through.
"It's making people realize, 'Hey, my life is not that bad, I need to go hug my kid and I need to do something nice for my wife or my kid,'" he said.
The couple are going to spend the next 18 months enjoying what time they have with their baby, who was born on November 11, but whose legs now don't move at all and her arms are showing less movement because of the disease.
"We could go around and cry all day long or we can enjoy the time we have with her," her mother said. "We have all the time in the world to cry when this is over."
Indeed, my life is not that bad.
Update from Avery's father on May 1, 2012
Update from Avery's father on May 1, 2012
"Avery passed away yesterday sometime around 3pm due to pulmonary complications related to SMA. In short, one of her lungs collapsed and she went into cardiac arrest."
